Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

February 7, 2008

This One is Called "Marie"


Each event in our lives is treated like a single occurrence. We all conceptualize them differently and look deep within each vignette for meaning. I have an example of what I am trying to say. This was a powerful episode in my life; one I will never forget. However, in all of the pain and anguish I experienced then, there were poetic and heartfelt moments which make the suffering bearable.

Some background information is necessary here. My mother was a fighter. Not in the physical sense. She had to endure pain for most of her adult existence. She battled problems with her back which necessitated at least two surgeries which I can remember; one of them was to fuse her spine. Her numerous ailments over the years loomed ominous and were treated individually by specialist after specialist until the name Systemic Lupus took over and she was treated correctly.

Then there was cancer. She braved chemotherapy and three enormous operations to save her life over the span of ten years. One of her care givers, a physician's assistant told me on the side after her surgery: “Your mother is one brave and tough woman. Really, I’ve never seen anyone fight so hard.

Her last fight came in the hospital following a life saving surgery to remove one of the tumors blocking her small intestine. The danger was she would die during the procedure. The alternative was she would starve to death. Her choice was to have the operation and come out alive.

During recovery, things never looked so grim. On a respirator, she would greet her family with a drowsy nod. We comforted her, staving off the notion that these were her last days. With the fanfare of a minor miracle, she was taken off the respirator the next morning and moved to intensive care. And, with her spirits raised, she proved everyone wrong and was transported to a step-down unit after a week; and then, ultimately, home.

Hospice workers are extraordinary people. Morphine, palliative care, and sun-setting, were all like odd pieces of furniture in our collective family vernacular until we saw them put into practice. Without the compassionate souls from Hospice, our mom would never have had the opportunity to view her garden from her living room window during those last days. We placed the bed there because there was no room in the house put it anywhere else. There had to be space for all of us to move in and about, taking turns at her side, caring for her wants and needs, and ultimately, consoling her. It was the perfect spot, because many of our relatives and friends made the sad journey from all over the country to visit her as she faded.

One scene which sticks out in my mind, which causes me both heartache and a curious sense of emotional gratification, is when our mother’s lifelong friend came to visit her. Two days before mom passed, she was drifting in and out of consciousness. Phone calls were made by all of us to those concerned for her to “get here.” All the way from Nevada, came my mother’s best friend. Mom knew Marie since they were both five years old. We kids called her “Aunt Marie,” and her children were our “cousins.” They shared everything, and were close for as long as each of them could remember. Mom and Marie went from Kindergarten through high school together, got married around the same time, had children, watched their parents die, and became grandparents. All the while their bond never faltered. When Marie moved across the country to be close to her children, they did not lose touch, and they were always on the phone together. The news of mom’s latest situation brought Marie out in a hurry.

By then, mom had no strength. It was all she could do to keep her eyes open. Time was short, and the rest of us were coming to grips with the reality that we would end the week without a mother and her grandchildren would be without their loving grandma. Quietly, Marie and Uncle Bill entered through the front door. Knocking was a mere formality and they never had to do so before. Marie carried herself with a brave face. She put her pocket book on a chair, walked quietly over to mom who was asleep, and took her hand. I was seated on the couch, watching as this reunion was about to take place.

Marie?” Mom’s voice was weak, gravelly, her breathing tortured. “Marie …
Shhh. It’s okay. It’s okay. I’m here.

No one needed to be asked to leave the room. I retreated to the backyard and kept an eye on them through the large bay window mom was situated by. I saw them clutching each other, and sharing private words encoded in a secret language of over sixty years of friendship. There were tears, and I thought at one point I saw mom smile. I watched them. I was a voyeur. Maybe I was trespassing and I didn’t care. This was my mother, and for the last few moments of her life she was able to reconnect with all of us; to stay here for just enough time for her friend to arrive and they could be pals again, children holding hands in the school yard, talking about boys, marriage, children, grandchildren, and finally what Marie was there for.

For me memories are shaped like bubbles; and, from the moment I learned my mother was going to die and up until her last breath, I can pick out small shapes, recollections. Every once in a while I reach out and grasp one and gaze into it like a crystal ball. This one is called Marie.

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October 8, 2007

The Toughest Thing To Write, Was Not

Writers are often called upon to perform unpleasant tasks, such as write an obituary, or to report on a tragic news story. For me, the most emotional, yet easiest piece I ever wrote was the eulogy for my mother. For many years, she battled both cancer and systemic Lupus. Unfortunately, there was plenty of time for her and the rest of us to contemplate her death. There was no hope, as the oncologist told her: "Ann, there is nothing we can do for you."

As I and my family kept vigil at her bedside, there was no avoiding the fact that she was going to pass on. Somewhere in my mind, I began to formulate the words which were to become her eulogy. As morbid as that sounds, she was my mother, and in those final, meditative moments of her life, I had time to summarize all that she meant to me and to the rest of us. From there, I was able to envision my thoughts and emotions, and ultimately put them on paper.

In fact, because I am one of those fiction writers who often insert my actual memories into the many pieces I author, I was able to steal a vignette from a short story I typed out on an old Smith Corona typewriter before I was married. On the way home from my parents house on the night my mother passed away, that scene played out in my head just as I wrote it all those years earlier, but the reasons why I opted to put it on paper were just as valid then as on the day she died when I chose to put it into her tribute.

The scene in my short story was crafted from a memory I had as a small boy. I couldn't have been older than the age of five because my little brother was an infant then. I can still see myself sitting in a chair at the kitchen table of our home as my mother cooked dinner for all of us. She was tired and her back was hurting, but she seemed happy. Dad came home from work, and he walked up behind her and kissed her on the cheek. When he walked away into their bedroom, my mother began to sing, softly to herself. I don't think she knew she was singing, or that I was there watching her, in awe of her beautiful voice. The song she sang was "Ave Maria." Perry Como would sing it on his Easter special every year, and my mother would never miss a performance. At times, she would sing along with him, the light from the television reflecting on her face, revealing her misty eyes.

She stayed like that in my mind for decades with her bright red hair pulled back, and with her family all coming home to enjoy her delicious cooking. She was at peace with herself, and I always look back on that moment whenever I’m feeling depressed or going through a hard time for inspiration.

My mother suffered a myriad of illnesses for most of her adult life which can now be attributed to Lupus. Her fight with cancer lasted well over ten years, and she needed at least three surgeries on her spine. Still, just being home and cooking for her family was enough to make her smile and sing the only song she loved so much it made her cry.

It was natural then, on my ride home the night she died, that I chose to immortalize that memory and share it with all of our friends and loved ones who came to show their respects for her at her wake. I removed that scene from that short story, in effect killing the fictional character that lived it in typeset, and returned it to its rightful owners. You see, I was the young voyeur that day, watching from my chair as she inspired me with her beauty and toughness. However, she was the one who lived through the pain and discomfort and became the example to us all. Her eulogy then, was easy to compose, as I had been writing it for my entire life in all of my stories and essays. She was one of my major influences, and she was my inspiration for that short story which was actually all about her in the first place.

As an author, I imagine everything, and yet, create nothing. As for every project I begin, I start from my birth, borrowing from all of my experiences until I've completed my latest manuscript. With the toughest assignment I ever undertook, it was, ironically, the easiest, because my writing was always inspired by my mother. I merely needed to summarize everything she was and will still be to all of us who remain. One day, when my own story ends, perhaps someone will be kind and pen a few words about me. Hopefully this won't be difficult for that person, as I wish to live my life with dignity and leave a proper example for my children, just as my mom did for me.




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September 26, 2007

The Biggest Event: Epilogue


On August 30, 2006, months after the ceremony in Congressman Peter King's office honoring my father and his WWII service, my mother passed away after a long battle with cancer and Lupus. The sorrow my father experienced after losing his wife of fifty two years was enormous. To this day, he honors her by having masses said in her name at church and finishing all of the projects around the house which both he and my mother planned to do before she became sick. With his wife gone, and with his own lingering health issues, dad has moved on with his life with his children to watch over him.

Back in June of 2007, my wife and I took dad with us to my sister's house as we were all invited to a family event. On the way home that Saturday night, it was dark, our children were dozing in the rear seats of our very large Trailblazer, and my wife sat in the back to accommodate my father as he needed the comfort of the front, bucket seat. As we drove home, dad talked about how both he and my mother both managed to take several trips together and had seen much of Europe and even Hawaii. While speaking of Europe, he paused and looked at me. Then, he said that he hoped to go back to Italy, because the one place he needed to see again was Rome. I said nothing, as I knew that the only time he ever went there was right after he was wounded in combat.

Both my wife and I were somewhat uncomfortable as we didn't want to ask him questions and get him upset, but we wanted to make sure that he knew that he could tell us anything and that we would listen to him. He stopped talking, and I drove along without bringing the subject up again.

A few days later I was at work and a woman co-worker of mine who usually asks how my father is doing stopped by my desk to chat. She's a wonderful person, very spiritual, dedicated to family, and with a genuine concern for others. I told her about my father mentioning Rome that night and his desire to return there. I also mentioned that he'd been bringing up the war a lot of late, just skirting around about exactly when and where in Italy he was wounded. I marveled at how he could remain silent about his experiences for so long, most of his adult life, and in the last year or so he talked the war often and at unexpected moments.

My co-worker said "Of course he's talking about it. This was the biggest event in his life. He's reconnecting with his youth." That sounded simple enough to me, but when I thought about it some more, I understood that he was trying to work out how he felt about the things he did over there. My mother was gone, and he no longer had to care for her every day and his energies could be spent elsewhere. Also, he had more time to think. It is possible now for him to reflect on his youth and come to terms with his pain and anguish over lost friends and months spent in a makeshift Army hospital in Rome.

Only recently, my father asked me to write a thank you letter to Congressman King for the ceremony in his office. Although it was over a year ago, and in spite of the fact that I thanked both him and his staff profusely for their kindness, dad still felt the desire to tell him something, however late it was. The inspiration of his desire to write the letter was the anniversary of my mother's passing.

A while ago, I suspected that dad wanted to get his medals for other reasons than just for the sake of his grandchildren. When he asked me to write a thank you letter to the congressman, he wanted me to include that "it was one of the last moments in my mother's life when she was able to attend a special event." My mother's health took a sharp turn for the worse soon the medal ceremony. There were many visits to doctors, a stay in the hospital for emergency surgery, and then, home again with help from those special folks from hospice who enabled our family to comfort our beloved mother at the end of her life.

Such is the unselfish nature of my father. One additional person benefited from that day than I originally believed. We made the medals and the honors bestowed upon him by the Congressman to be all about him. But, in reality, my father wanted to do something for his wife, the woman he devoted himself to completely. She was ill, and he wanted to show her that he was still strong for her and that there was something else for both of them to look forward to, this ceremony, where the two of them could perhaps share a special moment alone together afterward, without us kids, and feel young again.

The youthful soldier would hold his bride and show her something which would make her proud. The ribbons and medals were for his wife, his grandchildren, and in a small way for himself. This man, this father, husband, and person of deep religious faith kept his secrets to himself and used the biggest event of his life which caused him nothing but pain and grief to leave a legacy for his grandchildren and to see them smile, and to give him and his wife one more day where they could feel like newlyweds again. That man is my father, and that is what I will tell the good Congressman in my letter to him.